WORLD VITILIGO DAY: CELEBRATING BEAUTY IN ITS DIVERSITY

Every year on June 25th, the world observes World Vitiligo Day, a significant day dedicated to bringing attention to vitiligo, a chronic skin illness that results in pigmentation loss and white spots on the skin. The aim is to boost vitiligo healthcare and education and increase awareness of the mental challenges and social stigma attached to the disease.

Regardless of age, gender, or ethnicity, 1% of people worldwide suffer from vitiligo according to Pfizer. It happens when the body's immune system destroys skin cell melanocytes that produce melanin, causing the skin to lose its color and resulting in whitish, smooth patches on the skin. Though the precise reason for this condition is unknown, a confluence of autoimmune, genetic, and environmental factors is thought to be responsible. Vitiligo is not physically fatal or harmful; however, it can have a psychological impact due to its visible nature.

How Skin Disease Takes Emotional Toll

In 2011, a collaborative effort led by the VR Foundation (U.S.) and VITSAF (Nigeria), along with international supporters, established the first World Vitiligo Day. The goal was to raise awareness about the unrecognized disease and the challenges faced by those living with it. World Vitiligo Day was also a tribute to Michael Jackson, who came forth and shared his vitiligo struggles with the public.

Vitiligo's most noticeable sign is the development of white patches on the skin, a result of pigment loss. It can occur anywhere on the body. However, vitiligo's effects can extend beyond the skin. Some people may also experience premature graying of hair near the white patches, including eyelashes, eyebrows, and beard hair. Itching in the affected areas is another possible symptom. In some cases, the inner lining of the mouth and nose (mucous membranes) may become discolored. The most concerning, though less frequent, symptom is pigment loss or discoloration within the eye's inner lining (retina).

Overcoming Social Stigma

Living with vitiligo can be challenging. People experience social stigma on a daily basis that can cause anxiety, despair, and low self-esteem. Reversing public perception and promoting an inclusive society may require public awareness campaigns and educational programs. The severity determines how vitiligo is managed medically. A few options are light therapy, topical medicines, or even surgery. However, there isn't a cure, and the results may vary. Governments are increasing financial support to continue research and develop remedies. For instance, the Indian Vitiligo Association is committed to providing excellent healthcare outcomes for the community through exceptional care delivery and continuous medical education of its providers.

Combating Skin Shame with Fashion

Traditionally, the modeling industry has prioritized uniformity and flawless complexions. Vitiligo can be a barrier for aspiring models, limiting their opportunities. However, the tide is turning. With growing awareness and a push for inclusivity, some models with vitiligo are gracing runways and challenging conventional beauty standards. The trend can inspire self-acceptance for both those with vitiligo and the general public.

The Canadian fashion model Winnie Harlow rose to fame after appearing on America's Next Top Model. Unafraid to showcase her vitiligo, she broke barriers in the industry and redefined beauty standards.

Holistic Perspective

The medical industry plays a crucial role in managing vitiligo through diagnosis, treatment, and ongoing research and is greatly affected. Additionally, psychological support helps individuals cope with the emotional challenges associated with the condition.

World Vitiligo Day honors the fortitude and bravery of those who bear the illness. Community meetings, educational programs, and social media campaigns all contribute to the development of an international network of solidarity and support. We can work together to better the lives of millions of people, celebrate the beauty of variety, and build an all-inclusive community. Let us welcome and respect who they are.